Thursday, March 17, 2011

SB Clinic Update

Last week I took Joshua to his Spina Bifida Clinic appointment at CHOC and he is doing great! Docs are very pleased with how everything is looking. We reviewed his ultrasound results and his bladder is looking good. His kidneys are still collecting some urine but docs don't seem too worried about that. We are just going to keep him on antibiotics to keep his urine as sterile as possible to avoid a UTI or Kidney infection. He is also taking a medication three times a day that relaxes his bladder so it doesn't work too hard. We are increasing his cathing to 5 times per day to give his bladder another opportunity to empty and maintain lower pressures...docs say this should help with the urine in the kidneys. They will check them again in June to see how they are looking.

As for ortho, Joshua is maintaining the same leg movement that he had, which is always great news. Ortho plans on beginning his bracing at the next visit (12 months old) as long as he is sitting up on his own. He is close...real close.. so let's keep our fingers crossed!

Tuesday, March 8, 2011

The end of the Two's for Princess Abby


Our sweet little Princess is nearing the end of her second year! Amazing! This yr has been tough...they don't call them the terrible two's for no reason. But we are definitely seeing the light at the end of the tunnel. It's so fun to see her little personality develop. And...it's nice to observe her beginning to listen and understand what mommy and daddy are saying. She's a stubborn one for sure and she challenges us each day..but she is also so loving and nurturing and so full of spirit. I love watching her change and develop into the little girl she is becoming.

Some of her favorites:

Night time activity: watching one of the Disney movies and drinking Apple Juice. This week the favorite movie is Lady and the Tramp
Morning Activity: waking up with a smile on her face and yelling "Mommy I'm awake". Then she quickly demands a "cereal bar" (nutrigrain).
Game to play with Mommy: brushing Mommy's hair and putting in a pony tail "ouch"
Pair of shoes: Brown boots that she wants to wear with every outfit (even when it's warm out).
Toy to play with: baby dolls
TV show: Yo Gabba Gabba is in the lead!
Diva moment: telling Mommy or Daddy to "go away" (which we do not like)

Most recently she:
got a haircut
started taking showers instead of baths (and we're seeing the difference in out water bill)
started sleeping again in her twin bed (although she still has nights when she crawls into bed with us)
began wearing a size 3T clothes and size 8 shoes
learned the song "It's A Small World"
mastered her "please", "thank you", your welcome", "excuse me" and "bless yous"

And Most Importantly...she REALLY REALLY adores her baby brother and loves being a great Big Sister!

Happy 9 month Birthday Joshua!


So tomorrow Joshua will be 9 months old! Amazing, isn't it? Feels like just yesterday when we found out we were pregnant, even sooner than that when we found out about his Spina Bifida and feels like only minutes since we welcomed him into this world. What a crazy and wonderful and scary and joyful and stressful 9 months this has been. And yet..I can honestly say I would do it all over again just to get a peak at his sweet little smile.

Joshua has had to work hard to get to where he is today. I give the little man a lot of credit. For "typical" babies it's a natural progression of tummy time to rolling over to sitting up supported to sitting up on their very own. Not my little man. He had to work hard for these milestones. He had to put in hours every week at physical and occupation therapy, lots of tummy time (which he hates) and lots of doctors appts.... Yet 9 months later I am a very proud mama to say that my son can do the following:

roll over from front to back
roll over from side to side
sit supported
almost sit unsupported
laugh out loud
say "baba" when he wants to
clap his hands together
almost get out a wave
reach for objects
pass a toy from one hand to the other
pick up cheerios and put them in his mouth
AND sleep 12 hrs per night

What great accomplishments! We are so very proud of you Joshua!